Every day is an adventure. LE’s g-tube allows her to create her own adventures. She sees it as just another body part. If I ask where her button is, she pulls her shirt up and taps on the button. She tries to connect her own tubie pad and extension, and has tried to hook up a syringe to her button for a bolus feed. She is super smart. Guess what? That feeding tube is exactly what allows her to grow and learn.
Bonus fact: LE’s g-tube allows her to receive medicine 3 times a day (a total of 7 doses between 3 different meds) without ever having to taste them. Ever fight a toddler over meds? The tube takes all the fight away! We call it her Arc Reactor as it glows in the dark!