Heya folks, I know it’s been ages since the last update. Life has been super busy and it’s been challenging to get my thoughts together long enough to post.
The school year ended and the kidlets have been adjusting to more time around each other. It goes better some days than others, but so far everyone is still breathing! They were working on their Tiny Superheroes mission last month which was a Kindness Rocks theme, so they got to paint rocks! Always a fun activity.
LE has been having more GI issues, which led to a full system clean out (not fun for anyone) and that gave her a bit of relief. Unfortunately, it’s not a long term solution. We are pursuing more testing and hopefully can find answers for this poor squish. She also had to have dental work done, and we chose to do it under full anesthesia to make everything less traumatic for her. She’s a trooper!
We’ve been scheduling and rescheduling a lot of appointments for the kidlets, trying to get as much done over the summer as we can.
- Pulmonology (LB)
- Gastroenterology (LE)
- Physical Therapy (LE, LK)
- Occupational Therapy (LE)
- Ophthalmology (LE, LN)
- Dental (all 4 kidlets)
- Allergy (LE)
- Gastric Emptying Study (LE)
- I’m sure there’s more
It’s been challenging trying to balance medical needs with every day life. We try to get ahead of the game, but it really isn’t possible for us to anticipate everything that might pop up medically.
Overall, everyone is doing ok. We are doing our best to stay positive and roll with changes and challenges. It’s not always easy, but it is our life.
Hope you are well!