LE had a gastric emptying study yesterday. Basically, she ate scrambled eggs covered in some kind of radioactive isotope and then watched Backyardigans under an x-ray machine for 90 minutes. The machine recorded the isotopes as glowing dots on the screen, and it measured how long it took for the glowing dots to move into her intestines. The results told us that she has borderline delayed gastric emptying, which means it takes a bit longer than it should to move through. Which we already knew. In other news, the sky is blue and the grass is green. So, more testing. We are on the hunt for answers!
Today she saw orthopedics. She has mild hypotonia (muscle weakness), especially on her right side. When she moves around, her feet turn in, and more often than not she moves her legs from the hips (keeping them straighter and moving them out and around). She wears braces on her ankles already (SMOs) but we wanted to be sure it wasn’t anything structural. X-rays were taken and her bone structures from her hips to her toes are perfect! Doc said that she may or may not outgrow the bizarre walk, as the brain learns to control the necessary muscles and nerves. If she still has troubles when she is in kindergarten, we will revisit this. For now, one less worry!
LB is doing well. She still loves school! Choir is pretty much over for the year, which makes her sad, but she has had a lot of fun this year.
LN has been having a tougher time. We are seeing a lot of behavior from him that we haven’t seen in a long time. I am hoping we can get to the bottom of it soon. He isn’t trying to act out. I just wish I knew how to help him sort out what is going on in his head.
LK is, well, LK. Funny, sassy, and full of spunk. My brother came to visit recently and she walked right up to him and asked, “Are you mine?” So, I guess he is claimed Haha
All in all, we march on. Trying to take everything one day at a time can be very challenging sometimes. Some days just get overruled by Murphy’s Law, while others seem to go more smoothly. The one thing you can always expect around here is the unexpected!