Kidlets and Coffee

Another day in the life…


Venting means so many things. In this house, it often means pulling air out of LE’s tummy using her g button and an empty syringe. Yesterday, we pulled 56 ounces out, 60 ml (2 oz) at a time. It took about half an hour. She felt so much better afterwards! I am so thankful that we are able to pull the air out, she gets so distended and miserable.

One of the frustrating things we deal with daily is due to that air buildup. She gets so much pressure it pushes out her stomach contents through the button, into a bag that is designed to vent air, not fluids. Often, we will see 5 or more ounces in the bag!

Other than that, it is life as usual here. Chaos, madness, confusion, and caffeine!

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